caution larry

Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos.

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Monday, March 8, 2010
Weird stuff
Weird stuff has been happening to me. And not MS weird. Well, okay sorta MS weird. It's always MS's fault right? So, I got a sinus head cold thingy for three weeks in January. Finally kicked that only to get bronchitis 3 weeks later. The following day the bronchitis kicked in I got a weird rash that started under my chin and slowly started going up my face and all around my neck. Itchy and annoying to say the least.

So, I called the clinical trial nurses. They had me come in to see Dr. Traboulsee that afternoon. They took pictures of the rash to send to Novartis and promptly took me off Fingolimod! Seems like my body was just too overloaded with viruses so they are being cautious and put me on a drug vacation.

So, now it's been a week or so... and my skin looks lovely again and the bronchitis is gone. And yet... I'm stalling calling in to reschedule going back on Fingolimod. I'm a bit... scared. Hmph. And going back on means the dreaded fatigue and heart rate drop. That was a rough go last time around. What to do... what to do...