And now I'm moving into a new job... not a nurse yet! I have 3 more years of school to get through. But now I'm pregnant! So, my new job of mommy will start in and around March :) I couldn't be happier! Actually, truth be told, I'm much happier now in the 2nd trimester. The nausea and vomitting has stopped! Yay! I feel a little more human again :)
Now, on to the real reason for this blog... my MS. About 2 months into my r0egnancy I started having an attack. The numbness and burning starting creepy up from the bottom of my feet and now sits at about my ribs. My whole baby bump is numb! My stability when I walk is a bit sketchy this time around with this attack. I'm really hoping once I get to the third trimester my neurologist will be correct and this attack will start to recede. I'd like that.
So for anyone who might have my url in their feeds still, thanks for coming back around! I've seen a lot of good stuff in the media lately on MS that I'd like to post about.
So much change!
First, I got accepted to nursing school! I'll be doing a 4 year bachelor of science in nursing program with will make me a Registered Nurse by the end of it all. It's exciting, daunting, freeky, and something i'm so happy to finally be in the right place in my life to do it.
Secondly, I quit my job! I was there for almost 11 years so it was tough saying goodbye to all the great people and leave behind a completely different career.
Thirdly, I moved to a fantastic townhouse three weeks ago. It has all the space we need and I have my new student room set up. I'm really done with boxes though now. Really done. We moved in a heat wave and I was crashing every day from the heat. Bad timing!!
Next week I go see my neurologist for my next check in for my clinical trial drug FTY720 aka Fingolimod and now apparent Gilenia. I'm a bit leary about staying on the pill considering how I react to getting a cold. It's one thing to be able to call in sick at work but an entirely different thing for school to be sick for 14 days non stop. I wonder if there's a better fit for my changing life now?
And sadly one of my beloved cats is having some health challenges and I'm waiting for final results to see how much longer I'll have the privilege to know him. He doesn't act sick, but we've found a lot of stuff going on inside him. :(
It's getting fancy that little FTY720 pill!
You'll all be able to take FTY720 now! No more injections!
An update from my last post. My heart rate dropped to 58 and exactly one week later, all those side effects ended. Phew. It's good to be back feeling more normal!
So, who is going to try to switch when its fully available?
Back on Fingolimod!
Looks comfy eh? And this is the ECG contact thingy that are all over me. Legs, arms, chest mostly. I'll wear them all day as they do ECG's over the day.
So, I started this morning with a resting heart rate of 68. We'll see where it gets too. I'm a bit freaked out his time around as I know the temporary side effect of my heart rate dropping will be hitting me in a couple hours. And now I have a fresh new bottle of Fingolimod.
Not sick this time!
My trip was filled with amazing things! I got to fulfill a lifelong dream of seeing Bottlenose dolphins in the wild!
And then, I was out snorkeling and I could hear them calling. But I wasen't with it enough to raise my head out of the water. If I had, I would have seen a pod of them swimming past me!! Instead I happily followed a turtle and an eel :)
I did some amazing snorkeling. Maui lived up to it's reputation thats for sure!
The humpback whales were still in the are too and I got to see some babies practicing for their journey up to Alaska.
And of course the scenery everywhere was amazing!
And the greatest gift was my new niece was born: Samantha Rae
Other things in life
Okay, I'll say it
This was me at a medal ceremony one night. That was soooo great!
And the a great concert broke out!
And I went to a curling match!
There's my fav little guy Quatchi :)
They sure made my home town look lovely!
A little longer drug vacation
And fundraising for the MS society is going great so far! I just reached $1205.00 an hour ago! I'm thinking about having a cupcake sale in a couple weeks at work.
Let the fundraising begin!
Here is my link to donate if you can!
AND BIG NEWS! The McIntyre family have generously donated playoff
tickets to my fundraising! So here are the details if you want to win
ANY donations of $50.00 or more will be entered into a raffle for the tickets. The tickets details are:
Canuck Playoff Tickets!!
Round 1 Game 2
Section 112 Row 14
Seats 105 and 106
Game will be between April 16 to 18th
All donations must be in by April 14th. The draw for the tickets will happen at 5PM.
Thank you Dan and Nancy for your generosity!
A clearer head prevails
So, I called the clinical trial nurses. They had me come in to see Dr. Traboulsee that afternoon. They took pictures of the rash to send to Novartis and promptly took me off Fingolimod! Seems like my body was just too overloaded with viruses so they are being cautious and put me on a drug vacation.
So, now it's been a week or so... and my skin looks lovely again and the bronchitis is gone. And yet... I'm stalling calling in to reschedule going back on Fingolimod. I'm a bit... scared. Hmph. And going back on means the dreaded fatigue and heart rate drop. That was a rough go last time around. What to do... what to do...
Is anyone doing the MS Walk this April in Vancouver?
Employment and MS - a survey for World MS Day 2010
In preparation for World MS Day 2010 MSIF is doing a study on how MS impacts on employment of people with MS and their carers.
If you or someone you know has MS, please take this short survey - http://www.surveymonkey.com/s.aspx?sm=LiB_2bH0VtHsS0YCtcG46L1g_3d_3d, the results of which will be released on World MS Day on 26 May 2010. The survey will be available in ten languages when the new World MS Day website is launched next month.
Join the Global Movement. End MS!
And I have to say this