caution larry

Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos.

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Monday, May 31, 2010
Back on Fingolimod!
Wow, hospitals have good wifi!! I'm at UBC right now being monitored while I take my first dose of Fingolimod again. So far so good. It hasen't been in me long enough for the heart rate drop, so we'll see how that goes around hour 3 or 4. Here's where I am for the next 6 hours:

My domain for today

Looks comfy eh? And this is the ECG contact thingy that are all over me. Legs, arms, chest mostly. I'll wear them all day as they do ECG's over the day.

ECG thingy

So, I started this morning with a resting heart rate of 68. We'll see where it gets too. I'm a bit freaked out his time around as I know the temporary side effect of my heart rate dropping will be hitting me in a couple hours. And now I have a fresh new bottle of Fingolimod.

New bottle of Fingolimod

Monday, May 3, 2010
Not sick this time!
Yay! I just got back from Maui and I didn't get sick this time! I haven't been on FTY720 (Fingolimod) for a little while now and I hate to say it, but I think it helped having this drug vacation. I did put in the phone call today to get back on it though. I don't really want to tempt fate.

My trip was filled with amazing things! I got to fulfill a lifelong dream of seeing Bottlenose dolphins in the wild!

And then, I was out snorkeling and I could hear them calling. But I wasen't with it enough to raise my head out of the water. If I had, I would have seen a pod of them swimming past me!! Instead I happily followed a turtle and an eel :)

Hey you!

I did some amazing snorkeling. Maui lived up to it's reputation thats for sure!


The humpback whales were still in the are too and I got to see some babies practicing for their journey up to Alaska.



And of course the scenery everywhere was amazing!




And the greatest gift was my new niece was born: Samantha Rae