caution larry

Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos.

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Tuesday, March 31, 2009
Sativex results for MS spasticity
 
The controversal liquid cannibinoid drug Bayer created is coming out with some good results. Perhaps this will help them get this drug more widely available to those that could benefit from it:

"According to GW Pharmaceuticals, the prospectively defined primary efficacy endpoint of the study - the difference between the mean change in spasticity severity of Sativex vs Placebo in Phase B - was highly statistically significantly in favour of Sativex (p=0.0002). The numeric difference between the two groups as measured on a numeric rating scale was 0.84 units from a baseline of 3.89, greater than that achieved in previous studies.

The difference between Sativex and placebo was also significant for a number of secondary endpoints. Approximately 74% of Sativex patients achieved an improvement of greater than 30% in their spasticity score over the entire study versus 51% on placebo (p=0.0003), the company said. "


Tuesday, March 24, 2009
MS Walk time
 
It's that time of year again! I'm hoping to raise $5000.00 for the MS Society of Canada to help contribute to further research for my disease. Here is the link to my fund raising page:

https://msofs.mssociety.ca/2009WALK/Sponsor.aspx?&PID=1086771&L=2

You can donate on the site by clicking the red "pledge me" button in the top right hand corner. Any amount would be gladly accepted! I'll hopefully be doing the 5kms walk on April 26th this year. If anyone wants to join my team please let me know!

Thanks!
Kim Holland



For Second Life fans

 
I was forwarded these two youtube videos on what is being done in Second Life for folks with MS. Good stuffs guys and thanks for forwarding Justine.

Part One:

http://www.youtube.com/watch?v=BRVJiLXqXHU

Part Two:

http://www.youtube.com/watch?v=Lz-5Qq_yM04&feature=channel_page



Inevitable

 
Well, well, well... It finally happened! I'm having an attack. Darn! I almost made it two years since being on Fingolimod! So, a few weeks back my legs just didn't feel right. And not in that numb way I usually get. After a week, I couldn't rely on my legs holding me up. They would give out and my muscles were so tight it was painful with all movement. Of course the fatigue kicked in quite nicely so all around not so easy to deal with as my last attack of crazy numbness everywhere. So, I was taken off work to help me rest and heal. I was offered a round of the good ole' steriods, but I declined. Once I stopped working and and started sleeping I could see that I'm on the upswing. I'm back at work next week which will be a bit strange. I forgot how weird it is to just be here in my place out of society. Loads of time to knit at least ;) Speaking of knitting... have you all seen this? It makes me smile every time I see it.


Tuesday, March 17, 2009
 
A little late in posting this, but Oprah has Montel Williams on today talking about MS.