caution larry

Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos.

Subscribe (RSS)

no larry

My bloglines



November 2004
December 2004
January 2005
February 2005
March 2005
April 2005
May 2005
June 2005
July 2005
August 2005
September 2005
October 2005
November 2005
December 2005
January 2006
February 2006
March 2006
April 2006
May 2006
June 2006
July 2006
August 2006
September 2006
October 2006
November 2006
December 2006
January 2007
February 2007
March 2007
April 2007
May 2007
June 2007
July 2007
August 2007
September 2007
October 2007
November 2007
December 2007
January 2008
February 2008
March 2008
April 2008
May 2008
June 2008
July 2008
August 2008
September 2008
October 2008
November 2008
December 2008
January 2009
February 2009
March 2009
April 2009
May 2009
June 2009
July 2009
August 2009
September 2009
October 2009
November 2009
December 2009
January 2010
February 2010
March 2010
May 2010
June 2010
July 2010
September 2010
November 2011


Monday, December 7, 2009
Officially unblinded! I am on Fingolimod!
And I was wrong! My clinical trial nurse called me the other day to tell me what I have been officially taking these past couple of years. I've been on the lower dose of Fingolimod (FTY720) 0.5mg! I was wrong! I thought with my heart rate drop last year after re-dosing that I had to be on the higher dose of 1.25mg! I pretty much figured I wasen't on the Avonex as I didn't get any injection reactions or typical side effects. So, I really did inject myself with saline IM for one year in the name of science! hahah. That makes me laugh :)

So, all patients are being moved to the lower dose and I don't have to do anything, just keep taking the pill. It sounded like they are looking at FDA approvals next year perhaps, but I'll be able to stay on the trial until Novartis says no more. Very cool. I've enjoyed the great care I've had from all my nurses at UBC and all the doctors I see are great.