Mandatory Rest Period

And I was wrong! My clinical trial nurse called me the other day to tell me what I have been officially taking these past couple of years. I've been on the lower dose of Fingolimod (FTY720) 0.5mg! I was wrong! I thought with my heart rate drop last year after re-dosing that I had to be on the higher dose of 1.25mg! I pretty much figured I wasen't on the Avonex as I didn't get any injection reactions or typical side effects. So, I really did inject myself with saline IM for one year in the name of science! hahah. That makes me laugh :)

So, all patients are being moved to the lower dose and I don't have to do anything, just keep taking the pill. It sounded like they are looking at FDA approvals next year perhaps, but I'll be able to stay on the trial until Novartis says no more. Very cool. I've enjoyed the great care I've had from all my nurses at UBC and all the doctors I see are great.

- posted by Anonymous @ 11:08 AM - Link @ 11:08 AM - Link to this post - Comments (1)

Tuesday, December 1, 2009
What are you looking at?

- posted by Anonymous @ 10:17 AM - Link @ 10:17 AM - Link to this post - Comments (0)

			Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos. Subscribe (RSS) My bloglines Archives Current November 2004 December 2004 January 2005 February 2005 March 2005 April 2005 May 2005 June 2005 July 2005 August 2005 September 2005 October 2005 November 2005 December 2005 January 2006 February 2006 March 2006 April 2006 May 2006 June 2006 July 2006 August 2006 September 2006 October 2006 November 2006 December 2006 January 2007 February 2007 March 2007 April 2007 May 2007 June 2007 July 2007 August 2007 September 2007 October 2007 November 2007 December 2007 January 2008 February 2008 March 2008 April 2008 May 2008 June 2008 July 2008 August 2008 September 2008 October 2008 November 2008 December 2008 January 2009 February 2009 March 2009 April 2009 May 2009 June 2009 July 2009 August 2009 September 2009 October 2009 November 2009 December 2009 January 2010 February 2010 March 2010 May 2010 June 2010 July 2010 September 2010 November 2011

	Monday, December 7, 2009 *Officially unblinded! I am on Fingolimod!* And I was wrong! My clinical trial nurse called me the other day to tell me what I have been officially taking these past couple of years. I've been on the lower dose of Fingolimod (FTY720) 0.5mg! I was wrong! I thought with my heart rate drop last year after re-dosing that I had to be on the higher dose of 1.25mg! I pretty much figured I wasen't on the Avonex as I didn't get any injection reactions or typical side effects. So, I really did inject myself with saline IM for one year in the name of science! hahah. That makes me laugh :) So, all patients are being moved to the lower dose and I don't have to do anything, just keep taking the pill. It sounded like they are looking at FDA approvals next year perhaps, but I'll be able to stay on the trial until Novartis says no more. Very cool. I've enjoyed the great care I've had from all my nurses at UBC and all the doctors I see are great. - posted by Anonymous @ 11:08 AM - Link @ 11:08 AM - Link to this post - Comments (1) Tuesday, December 1, 2009 *What are you looking at?* - posted by Anonymous @ 10:17 AM - Link @ 10:17 AM - Link to this post - Comments (0)