caution larry

Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos.

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Sunday, November 22, 2009
The CCSVI news
Okay, so I've spent all weekend going over all the info on The Liberation Treatment or CCSVI. I think the most profound thing I heard in the show on W5 was this. A woman said that all of a sudden she could feel her hands and her legs again. They worked again, but she could actually FEEL them again after having the treatment. The thought of that brings tears to my eyes. For a moment, just a moment, I put myself in her shoes. And I seriously cannot even fathom what that would have felt like. And really, I don't like to go there to be honest. I've spent a lot of heartache coming to terms with my MS and so until that should ever be an option for me to have that kind of release from it, I just can't go there. I want to. But that hope long ago faded with the acceptance of my life with MS. For life. So until those trials really progress to a point of making it a viable treatment option, I think I need to stay where I am. Taking my little Fingolimod pill every morning. But you can be certain, that if UBC gets CCSVI in the trail phase, I'll be the first to get my jugular vein scanned to see if I have the narrowing and the iron accumulating!!

*** Quick update if you want to participate in Dr. Haackes research. All guidelines for sending him your scan are posted here: