Mandatory Rest Period

Okay, so I've spent all weekend going over all the info on The Liberation Treatment or CCSVI. I think the most profound thing I heard in the show on W5 was this. A woman said that all of a sudden she could feel her hands and her legs again. They worked again, but she could actually FEEL them again after having the treatment. The thought of that brings tears to my eyes. For a moment, just a moment, I put myself in her shoes. And I seriously cannot even fathom what that would have felt like. And really, I don't like to go there to be honest. I've spent a lot of heartache coming to terms with my MS and so until that should ever be an option for me to have that kind of release from it, I just can't go there. I want to. But that hope long ago faded with the acceptance of my life with MS. For life. So until those trials really progress to a point of making it a viable treatment option, I think I need to stay where I am. Taking my little Fingolimod pill every morning. But you can be certain, that if UBC gets CCSVI in the trail phase, I'll be the first to get my jugular vein scanned to see if I have the narrowing and the iron accumulating!!

*** Quick update if you want to participate in Dr. Haackes research. All guidelines for sending him your scan are posted here: http://www.ms-mri.com/

- posted by Anonymous @ 10:10 PM - Link @ 10:10 PM - Link to this post - Comments (0)

			Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos. Subscribe (RSS) My bloglines Archives Current November 2004 December 2004 January 2005 February 2005 March 2005 April 2005 May 2005 June 2005 July 2005 August 2005 September 2005 October 2005 November 2005 December 2005 January 2006 February 2006 March 2006 April 2006 May 2006 June 2006 July 2006 August 2006 September 2006 October 2006 November 2006 December 2006 January 2007 February 2007 March 2007 April 2007 May 2007 June 2007 July 2007 August 2007 September 2007 October 2007 November 2007 December 2007 January 2008 February 2008 March 2008 April 2008 May 2008 June 2008 July 2008 August 2008 September 2008 October 2008 November 2008 December 2008 January 2009 February 2009 March 2009 April 2009 May 2009 June 2009 July 2009 August 2009 September 2009 October 2009 November 2009 December 2009 January 2010 February 2010 March 2010 May 2010 June 2010 July 2010 September 2010 November 2011

	Sunday, November 22, 2009 *The CCSVI news* Okay, so I've spent all weekend going over all the info on The Liberation Treatment or CCSVI. I think the most profound thing I heard in the show on W5 was this. A woman said that all of a sudden she could feel her hands and her legs again. They worked again, but she could actually FEEL them again after having the treatment. The thought of that brings tears to my eyes. For a moment, just a moment, I put myself in her shoes. And I seriously cannot even fathom what that would have felt like. And really, I don't like to go there to be honest. I've spent a lot of heartache coming to terms with my MS and so until that should ever be an option for me to have that kind of release from it, I just can't go there. I want to. But that hope long ago faded with the acceptance of my life with MS. For life. So until those trials really progress to a point of making it a viable treatment option, I think I need to stay where I am. Taking my little Fingolimod pill every morning. But you can be certain, that if UBC gets CCSVI in the trail phase, I'll be the first to get my jugular vein scanned to see if I have the narrowing and the iron accumulating!! *** Quick update if you want to participate in Dr. Haackes research. All guidelines for sending him your scan are posted here: http://www.ms-mri.com/ - posted by Anonymous @ 10:10 PM - Link @ 10:10 PM - Link to this post - Comments (0)