Mandatory Rest Period

The controversal liquid cannibinoid drug Bayer created is coming out with some good results. Perhaps this will help them get this drug more widely available to those that could benefit from it:

"According to GW Pharmaceuticals, the prospectively defined primary efficacy endpoint of the study - the difference between the mean change in spasticity severity of Sativex vs Placebo in Phase B - was highly statistically significantly in favour of Sativex (p=0.0002). The numeric difference between the two groups as measured on a numeric rating scale was 0.84 units from a baseline of 3.89, greater than that achieved in previous studies.

The difference between Sativex and placebo was also significant for a number of secondary endpoints. Approximately 74% of Sativex patients achieved an improvement of greater than 30% in their spasticity score over the entire study versus 51% on placebo (p=0.0003), the company said. "

- posted by Anonymous @ 12:50 PM - Link @ 12:50 PM - Link to this post - Comments (0)

Tuesday, March 24, 2009
MS Walk time

It's that time of year again! I'm hoping to raise $5000.00 for the MS Society of Canada to help contribute to further research for my disease. Here is the link to my fund raising page:

https://msofs.mssociety.ca/2009WALK/Sponsor.aspx?&PID=1086771&L=2

You can donate on the site by clicking the red "pledge me" button in the top right hand corner. Any amount would be gladly accepted! I'll hopefully be doing the 5kms walk on April 26th this year. If anyone wants to join my team please let me know!

Thanks!
Kim Holland

- posted by Anonymous @ 3:15 PM - Link @ 3:15 PM - Link to this post - Comments (0)

For Second Life fans

I was forwarded these two youtube videos on what is being done in Second Life for folks with MS. Good stuffs guys and thanks for forwarding Justine.

Part One:

http://www.youtube.com/watch?v=BRVJiLXqXHU

Part Two:

http://www.youtube.com/watch?v=Lz-5Qq_yM04&feature=channel_page

- posted by Anonymous @ 2:28 PM - Link @ 2:28 PM - Link to this post - Comments (0)

Inevitable

Well, well, well... It finally happened! I'm having an attack. Darn! I almost made it two years since being on Fingolimod! So, a few weeks back my legs just didn't feel right. And not in that numb way I usually get. After a week, I couldn't rely on my legs holding me up. They would give out and my muscles were so tight it was painful with all movement. Of course the fatigue kicked in quite nicely so all around not so easy to deal with as my last attack of crazy numbness everywhere. So, I was taken off work to help me rest and heal. I was offered a round of the good ole' steriods, but I declined. Once I stopped working and and started sleeping I could see that I'm on the upswing. I'm back at work next week which will be a bit strange. I forgot how weird it is to just be here in my place out of society. Loads of time to knit at least ;) Speaking of knitting... have you all seen this? It makes me smile every time I see it.

- posted by Anonymous @ 2:21 PM - Link @ 2:21 PM - Link to this post - Comments (0)

Tuesday, March 17, 2009

A little late in posting this, but Oprah has Montel Williams on today talking about MS.

- posted by Anonymous @ 11:24 AM - Link @ 11:24 AM - Link to this post - Comments (0)

			Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos. Subscribe (RSS) My bloglines Archives Current November 2004 December 2004 January 2005 February 2005 March 2005 April 2005 May 2005 June 2005 July 2005 August 2005 September 2005 October 2005 November 2005 December 2005 January 2006 February 2006 March 2006 April 2006 May 2006 June 2006 July 2006 August 2006 September 2006 October 2006 November 2006 December 2006 January 2007 February 2007 March 2007 April 2007 May 2007 June 2007 July 2007 August 2007 September 2007 October 2007 November 2007 December 2007 January 2008 February 2008 March 2008 April 2008 May 2008 June 2008 July 2008 August 2008 September 2008 October 2008 November 2008 December 2008 January 2009 February 2009 March 2009 April 2009 May 2009 June 2009 July 2009 August 2009 September 2009 October 2009 November 2009 December 2009 January 2010 February 2010 March 2010 May 2010 June 2010 July 2010 September 2010 November 2011

	Tuesday, March 31, 2009 *Sativex results for MS spasticity* The controversal liquid cannibinoid drug Bayer created is coming out with some good results. Perhaps this will help them get this drug more widely available to those that could benefit from it: "According to GW Pharmaceuticals, the prospectively defined primary efficacy endpoint of the study - the difference between the mean change in spasticity severity of Sativex vs Placebo in Phase B - was highly statistically significantly in favour of Sativex (p=0.0002). The numeric difference between the two groups as measured on a numeric rating scale was 0.84 units from a baseline of 3.89, greater than that achieved in previous studies. The difference between Sativex and placebo was also significant for a number of secondary endpoints. Approximately 74% of Sativex patients achieved an improvement of greater than 30% in their spasticity score over the entire study versus 51% on placebo (p=0.0003), the company said. " - posted by Anonymous @ 12:50 PM - Link @ 12:50 PM - Link to this post - Comments (0) Tuesday, March 24, 2009 *MS Walk time* It's that time of year again! I'm hoping to raise $5000.00 for the MS Society of Canada to help contribute to further research for my disease. Here is the link to my fund raising page: https://msofs.mssociety.ca/2009WALK/Sponsor.aspx?&PID=1086771&L=2 You can donate on the site by clicking the red "pledge me" button in the top right hand corner. Any amount would be gladly accepted! I'll hopefully be doing the 5kms walk on April 26th this year. If anyone wants to join my team please let me know! Thanks! Kim Holland - posted by Anonymous @ 3:15 PM - Link @ 3:15 PM - Link to this post - Comments (0) *For Second Life fans* I was forwarded these two youtube videos on what is being done in Second Life for folks with MS. Good stuffs guys and thanks for forwarding Justine. Part One: http://www.youtube.com/watch?v=BRVJiLXqXHU Part Two: http://www.youtube.com/watch?v=Lz-5Qq_yM04&feature=channel_page - posted by Anonymous @ 2:28 PM - Link @ 2:28 PM - Link to this post - Comments (0) *Inevitable* Well, well, well... It finally happened! I'm having an attack. Darn! I almost made it two years since being on Fingolimod! So, a few weeks back my legs just didn't feel right. And not in that numb way I usually get. After a week, I couldn't rely on my legs holding me up. They would give out and my muscles were so tight it was painful with all movement. Of course the fatigue kicked in quite nicely so all around not so easy to deal with as my last attack of crazy numbness everywhere. So, I was taken off work to help me rest and heal. I was offered a round of the good ole' steriods, but I declined. Once I stopped working and and started sleeping I could see that I'm on the upswing. I'm back at work next week which will be a bit strange. I forgot how weird it is to just be here in my place out of society. Loads of time to knit at least ;) Speaking of knitting... have you all seen this? It makes me smile every time I see it. - posted by Anonymous @ 2:21 PM - Link @ 2:21 PM - Link to this post - Comments (0) Tuesday, March 17, 2009 A little late in posting this, but Oprah has Montel Williams on today talking about MS. - posted by Anonymous @ 11:24 AM - Link @ 11:24 AM - Link to this post - Comments (0)