Mandatory Rest Period

Well, that was one heck of a long day of tests! Jeesh! I think the best test was my blinded Neurological exam. I love that doctor! He's so great and is the doctor who gave me my diagnosis. So, I'm so happy to see him even though I can't talk to him. I can only answer his questions. But my neurological exam was going along and he wasen't finding anything to report on. So he went looking and found a faulty reaction in my left arm. It was pretty funny. He was laughing and I asked him to take back my diagnosis!

In a couple weeks I'll be hearing back on the extension part of the trial. It's not fully ready so I'm officially off all of the meds. I took my last dose of Fingolimod after I did all my bloodwork and that was it. WEIRD! I was about to leave the house this morning and I couldn't figure out what I was missing. I just knew something in my routine wasen't right and it felt like I was leaving the house without something. I figured out it was the whole pill taking and writing down the time and date in my diary. And you know, it was a bit of a strange feeling that I talked to my nurse about - not wanting to be off MS meds now. Be it Avonex or Fingolimod (whatever I'm on) I'm thankful for the impact it's made so far on my health. I've only had one attack in the last year. I have to live with MS all my life so I know I have to be an active participent in managing it, so being off of everything just feels wrong now! So I'm looking forward to finding out more about the extension when it's ready.

- posted by Anonymous @ 2:59 PM - Link @ 2:59 PM - Link to this post - Comments (1)

			Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos. Subscribe (RSS) My bloglines Archives Current November 2004 December 2004 January 2005 February 2005 March 2005 April 2005 May 2005 June 2005 July 2005 August 2005 September 2005 October 2005 November 2005 December 2005 January 2006 February 2006 March 2006 April 2006 May 2006 June 2006 July 2006 August 2006 September 2006 October 2006 November 2006 December 2006 January 2007 February 2007 March 2007 April 2007 May 2007 June 2007 July 2007 August 2007 September 2007 October 2007 November 2007 December 2007 January 2008 February 2008 March 2008 April 2008 May 2008 June 2008 July 2008 August 2008 September 2008 October 2008 November 2008 December 2008 January 2009 February 2009 March 2009 April 2009 May 2009 June 2009 July 2009 August 2009 September 2009 October 2009 November 2009 December 2009 January 2010 February 2010 March 2010 May 2010 June 2010 July 2010 September 2010 November 2011

	Thursday, May 22, 2008 *No more meds!* Well, that was one heck of a long day of tests! Jeesh! I think the best test was my blinded Neurological exam. I love that doctor! He's so great and is the doctor who gave me my diagnosis. So, I'm so happy to see him even though I can't talk to him. I can only answer his questions. But my neurological exam was going along and he wasen't finding anything to report on. So he went looking and found a faulty reaction in my left arm. It was pretty funny. He was laughing and I asked him to take back my diagnosis! In a couple weeks I'll be hearing back on the extension part of the trial. It's not fully ready so I'm officially off all of the meds. I took my last dose of Fingolimod after I did all my bloodwork and that was it. WEIRD! I was about to leave the house this morning and I couldn't figure out what I was missing. I just knew something in my routine wasen't right and it felt like I was leaving the house without something. I figured out it was the whole pill taking and writing down the time and date in my diary. And you know, it was a bit of a strange feeling that I talked to my nurse about - not wanting to be off MS meds now. Be it Avonex or Fingolimod (whatever I'm on) I'm thankful for the impact it's made so far on my health. I've only had one attack in the last year. I have to live with MS all my life so I know I have to be an active participent in managing it, so being off of everything just feels wrong now! So I'm looking forward to finding out more about the extension when it's ready. - posted by Anonymous @ 2:59 PM - Link @ 2:59 PM - Link to this post - Comments (1)