Mandatory Rest Period

Well, my last day on the clinical trial CFTY7200D2302 othewise known as TRANSFORMS testing Avonex against trial drug Fingolimod is on Tuesday. That means I have injected myself 51 times with either Avonex or saline and Sunday is the very last one! WOOHOO! I keep wondering if this really might be the last time I would have to do an injection like I have been for my MS as a treatment option. Taking a pill everyday too has been a non event. Much nicer to take it every day from my perspective than the once a week injection.

I have made the decision to go in the extention trial and as I understand it so far, I will just continue on the oral Fingolimod and will not continue Avonex injections. Interesting. So, my hope would be to stay on the pill until it reaches FDA approval so that I wouldn't have to take a break from it and have to do another MS med until it does become available. I'll be getting all the details on Tuesday at my one year appointment.

So Tuesday... what a day that will be. Here's the run down:
Urinalysis and pregnancy test
Bloodwork
Ophthalology exam with optical coherence tomography test
Neurolical exam
Physical exam
Vital Signs
ECG
MSFC
MRI
Pulmonary Function Test
Chest X-Ray
Quality of Life Questionaires
Review of any adverse events

Phew! That is going to be one long day. My eye exam starts at 8:30 and that means having hugely dialated eyes for most of the day! Argh! I hate those super duper drops they use. And the most disappointing thing is that I will not be told for probably a year as to what med I've been on all this year. Darn! I really wanna know!

- posted by Anonymous @ 2:08 PM - Link @ 2:08 PM - Link to this post - Comments (0)

			Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos. Subscribe (RSS) My bloglines Archives Current November 2004 December 2004 January 2005 February 2005 March 2005 April 2005 May 2005 June 2005 July 2005 August 2005 September 2005 October 2005 November 2005 December 2005 January 2006 February 2006 March 2006 April 2006 May 2006 June 2006 July 2006 August 2006 September 2006 October 2006 November 2006 December 2006 January 2007 February 2007 March 2007 April 2007 May 2007 June 2007 July 2007 August 2007 September 2007 October 2007 November 2007 December 2007 January 2008 February 2008 March 2008 April 2008 May 2008 June 2008 July 2008 August 2008 September 2008 October 2008 November 2008 December 2008 January 2009 February 2009 March 2009 April 2009 May 2009 June 2009 July 2009 August 2009 September 2009 October 2009 November 2009 December 2009 January 2010 February 2010 March 2010 May 2010 June 2010 July 2010 September 2010 November 2011

	Thursday, May 15, 2008 *Almost there! One year on Fingolimod (maybe)! :)* Well, my last day on the clinical trial CFTY7200D2302 othewise known as TRANSFORMS testing Avonex against trial drug Fingolimod is on Tuesday. That means I have injected myself 51 times with either Avonex or saline and Sunday is the very last one! WOOHOO! I keep wondering if this really might be the last time I would have to do an injection like I have been for my MS as a treatment option. Taking a pill everyday too has been a non event. Much nicer to take it every day from my perspective than the once a week injection. I have made the decision to go in the extention trial and as I understand it so far, I will just continue on the oral Fingolimod and will not continue Avonex injections. Interesting. So, my hope would be to stay on the pill until it reaches FDA approval so that I wouldn't have to take a break from it and have to do another MS med until it does become available. I'll be getting all the details on Tuesday at my one year appointment. So Tuesday... what a day that will be. Here's the run down: Urinalysis and pregnancy test Bloodwork Ophthalology exam with optical coherence tomography test Neurolical exam Physical exam Vital Signs ECG MSFC MRI Pulmonary Function Test Chest X-Ray Quality of Life Questionaires Review of any adverse events Phew! That is going to be one long day. My eye exam starts at 8:30 and that means having hugely dialated eyes for most of the day! Argh! I hate those super duper drops they use. And the most disappointing thing is that I will not be told for probably a year as to what med I've been on all this year. Darn! I really wanna know! - posted by Anonymous @ 2:08 PM - Link @ 2:08 PM - Link to this post - Comments (0)