Mandatory Rest Period

My appointment last week went well. I think it was the first time I gave blood where I didn't even have the slightest reaction that I usually have! Yay! My chart has all these red warning notes saying that I'm at high risk of fainting. I laugh at that now! So cool for that lifetime of fainting to be gone just for going on this trial and making the effort to change that ingrained response.

So, I did the usual check-in stuff. Bloodwork, urine, ECG, eye exam, blind Neuro exam, regular Neuro exam (with the one I can talk to), Quality of Life questionaires, cognitive function tests and Pulmonary Function test. Wee! The blind exam is funny. It's pretty routine and I usually get Dr. Oger who I absolutely love! He's the doctor that gave me my diagnosis and I have a lot of respect for how he did that for me from a compassionate point of view. I can't talk to him during the exam really. I can only answer his questions. But he said to me that pretty soon with how many times I have to do this exam, I'll be able to just show him the next thing that needs to happen. it's funny how he asks questions too... he'll ask me to look down at the floor and then ask, is there any sensation you would like to tell me about? Or he'll ask, Is there any numbness you'd like to tell me about? He was doing the whole poke you with a toothpick thing, then checked all my reflexes. Then, with a straight face he asks me to move my ears and shows me how he can! I burst out laughing! I said, "thats not a part of the Neuro exam! Thats not fair! I can't do that!" It was pretty funny. Makes for a nicer atmosphere to have a little humour thrown into a day of non stop tests! :)

I forgot to ask for a couple things this time... I usually ask for my EDSS score and my blood pressure readings. My last EDSS score was 1.5 I think. I'll have to ask the next time I'm in. February is when my next appointment is at the 9 month mark.

- posted by Anonymous @ 10:43 AM - Link @ 10:43 AM - Link to this post - Comments (0)

			Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos. Subscribe (RSS) My bloglines Archives Current November 2004 December 2004 January 2005 February 2005 March 2005 April 2005 May 2005 June 2005 July 2005 August 2005 September 2005 October 2005 November 2005 December 2005 January 2006 February 2006 March 2006 April 2006 May 2006 June 2006 July 2006 August 2006 September 2006 October 2006 November 2006 December 2006 January 2007 February 2007 March 2007 April 2007 May 2007 June 2007 July 2007 August 2007 September 2007 October 2007 November 2007 December 2007 January 2008 February 2008 March 2008 April 2008 May 2008 June 2008 July 2008 August 2008 September 2008 October 2008 November 2008 December 2008 January 2009 February 2009 March 2009 April 2009 May 2009 June 2009 July 2009 August 2009 September 2009 October 2009 November 2009 December 2009 January 2010 February 2010 March 2010 May 2010 June 2010 July 2010 September 2010 November 2011

	Wednesday, November 28, 2007 *Fingolimod vs. Avonex Clinical Trial Appointment - 6 months!* My appointment last week went well. I think it was the first time I gave blood where I didn't even have the slightest reaction that I usually have! Yay! My chart has all these red warning notes saying that I'm at high risk of fainting. I laugh at that now! So cool for that lifetime of fainting to be gone just for going on this trial and making the effort to change that ingrained response. So, I did the usual check-in stuff. Bloodwork, urine, ECG, eye exam, blind Neuro exam, regular Neuro exam (with the one I can talk to), Quality of Life questionaires, cognitive function tests and Pulmonary Function test. Wee! The blind exam is funny. It's pretty routine and I usually get Dr. Oger who I absolutely love! He's the doctor that gave me my diagnosis and I have a lot of respect for how he did that for me from a compassionate point of view. I can't talk to him during the exam really. I can only answer his questions. But he said to me that pretty soon with how many times I have to do this exam, I'll be able to just show him the next thing that needs to happen. it's funny how he asks questions too... he'll ask me to look down at the floor and then ask, is there any sensation you would like to tell me about? Or he'll ask, Is there any numbness you'd like to tell me about? He was doing the whole poke you with a toothpick thing, then checked all my reflexes. Then, with a straight face he asks me to move my ears and shows me how he can! I burst out laughing! I said, "thats not a part of the Neuro exam! Thats not fair! I can't do that!" It was pretty funny. Makes for a nicer atmosphere to have a little humour thrown into a day of non stop tests! :) I forgot to ask for a couple things this time... I usually ask for my EDSS score and my blood pressure readings. My last EDSS score was 1.5 I think. I'll have to ask the next time I'm in. February is when my next appointment is at the 9 month mark. - posted by Anonymous @ 10:43 AM - Link @ 10:43 AM - Link to this post - Comments (0)