caution larry

Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos.

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Wednesday, November 28, 2007
Fingolimod vs. Avonex Clinical Trial Appointment - 6 months!
 
My appointment last week went well. I think it was the first time I gave blood where I didn't even have the slightest reaction that I usually have! Yay! My chart has all these red warning notes saying that I'm at high risk of fainting. I laugh at that now! So cool for that lifetime of fainting to be gone just for going on this trial and making the effort to change that ingrained response.

So, I did the usual check-in stuff. Bloodwork, urine, ECG, eye exam, blind Neuro exam, regular Neuro exam (with the one I can talk to), Quality of Life questionaires, cognitive function tests and Pulmonary Function test. Wee! The blind exam is funny. It's pretty routine and I usually get Dr. Oger who I absolutely love! He's the doctor that gave me my diagnosis and I have a lot of respect for how he did that for me from a compassionate point of view. I can't talk to him during the exam really. I can only answer his questions. But he said to me that pretty soon with how many times I have to do this exam, I'll be able to just show him the next thing that needs to happen. it's funny how he asks questions too... he'll ask me to look down at the floor and then ask, is there any sensation you would like to tell me about? Or he'll ask, Is there any numbness you'd like to tell me about? He was doing the whole poke you with a toothpick thing, then checked all my reflexes. Then, with a straight face he asks me to move my ears and shows me how he can! I burst out laughing! I said, "thats not a part of the Neuro exam! Thats not fair! I can't do that!" It was pretty funny. Makes for a nicer atmosphere to have a little humour thrown into a day of non stop tests! :)

I forgot to ask for a couple things this time... I usually ask for my EDSS score and my blood pressure readings. My last EDSS score was 1.5 I think. I'll have to ask the next time I'm in. February is when my next appointment is at the 9 month mark.