caution larry

Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos.

Subscribe (RSS)

no larry

My bloglines



November 2004
December 2004
January 2005
February 2005
March 2005
April 2005
May 2005
June 2005
July 2005
August 2005
September 2005
October 2005
November 2005
December 2005
January 2006
February 2006
March 2006
April 2006
May 2006
June 2006
July 2006
August 2006
September 2006
October 2006
November 2006
December 2006
January 2007
February 2007
March 2007
April 2007
May 2007
June 2007
July 2007
August 2007
September 2007
October 2007
November 2007
December 2007
January 2008
February 2008
March 2008
April 2008
May 2008
June 2008
July 2008
August 2008
September 2008
October 2008
November 2008
December 2008
January 2009
February 2009
March 2009
April 2009
May 2009
June 2009
July 2009
August 2009
September 2009
October 2009
November 2009
December 2009
January 2010
February 2010
March 2010
May 2010
June 2010
July 2010
September 2010
November 2011


Wednesday, November 28, 2007
Fingolimod vs. Avonex Clinical Trial Appointment - 6 months!
My appointment last week went well. I think it was the first time I gave blood where I didn't even have the slightest reaction that I usually have! Yay! My chart has all these red warning notes saying that I'm at high risk of fainting. I laugh at that now! So cool for that lifetime of fainting to be gone just for going on this trial and making the effort to change that ingrained response.

So, I did the usual check-in stuff. Bloodwork, urine, ECG, eye exam, blind Neuro exam, regular Neuro exam (with the one I can talk to), Quality of Life questionaires, cognitive function tests and Pulmonary Function test. Wee! The blind exam is funny. It's pretty routine and I usually get Dr. Oger who I absolutely love! He's the doctor that gave me my diagnosis and I have a lot of respect for how he did that for me from a compassionate point of view. I can't talk to him during the exam really. I can only answer his questions. But he said to me that pretty soon with how many times I have to do this exam, I'll be able to just show him the next thing that needs to happen. it's funny how he asks questions too... he'll ask me to look down at the floor and then ask, is there any sensation you would like to tell me about? Or he'll ask, Is there any numbness you'd like to tell me about? He was doing the whole poke you with a toothpick thing, then checked all my reflexes. Then, with a straight face he asks me to move my ears and shows me how he can! I burst out laughing! I said, "thats not a part of the Neuro exam! Thats not fair! I can't do that!" It was pretty funny. Makes for a nicer atmosphere to have a little humour thrown into a day of non stop tests! :)

I forgot to ask for a couple things this time... I usually ask for my EDSS score and my blood pressure readings. My last EDSS score was 1.5 I think. I'll have to ask the next time I'm in. February is when my next appointment is at the 9 month mark.