caution larry

Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos.

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Wednesday, August 29, 2007
Pain, pain everywhere
New symptoms creeping in on me... I'm hating Larry the Lesion and all his friends right now. So in the last week alone I have the numbness still in about 60% of my body. My arm seems to not be numb anymore so thats nice. I started having this shooting pain in my left cheek. I forget what thats called... Tri... something... but it seems to almost be gone. It was rather irritating to feel a constant pain sensation in my face with every movement of my face. Thats new. Then I lost all sensation to my tongue. Kinda like when your at the dentist and have had freezing. And when it's "thawing out" and you eat or drink too early you have that sensation (or lack of sensation) in your tongue. Annoying. That went away after a day and then I lost all my taste buds for 3 days or so. My lumbar pain that I typically have is super bad right now too so I've gone back to taking meds at night to help stay caught up on sleep. I was at the MS clinic most of the day yesterday for my 3 month check in for the Fingolimod trial. So far things are going well for me in regards to the trial... I don't appear to have side effects from whichever drug I'm on, but with having an official relapse they are wanting me to report in if things change. With how rapidly symptoms are coming and going its a bit tough to call any of them specifically an attack, so I'm just to watch things right now. They called them kinda suedo attacks. And thank god, I can stay in the trial! I'm happy about staying on meds. I want the benefit regardless of having an attack. I know the drugs won't stop all disease activity so it's expected. I talked to my neurologist about how my stress level is affecting my MS. I feel like it's feeding Larry and the stress in my life is going to continue for some time it seems. I can't escape it, I just have to keep trying to survive it but she said that I am absolutely going to have MS symptoms because of it. A stressed brain is just going to distract your immune system in a negative way, so of course you'll see more attacks. So thats me this week... how you all feeling these days?