caution larry

Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos.

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Wednesday, July 4, 2007
One month check-in
I spent the better part of the day yesterday at the UBC MS clinic to do the one month tests for the Fingolimod trial. It was a big day for me as I made a choice to not lie down to get blood taken. That was my safe way so if I fainted I would not fall over anywhere. But, enough is enough, I need to be a normal person and sit in a chair to have blood drawn. So, I did! And I didn't faint! I figure if i can stab myself and give an injection, I can get used to all this blood letting too. I didn't get any of the sensations of fainting, but my one tactic and making thenurse ask me an open ended question just prior to stabbing me. That way I have to be polite and answer the question which takes me away from focusing on the blood being taken. I won't look at my arm either. That'd be tempting fate at this point! It's been interesting following my blood results. Nothing abnormal has turned up other than a low/normal blood glucose reading and a low vitamin B reading. Kinda interesting to find that out because it's not like I would know any of that based on my daily diet or my once a year visit with my family doctor. I noticed something the other day. I've been able to walk farther without having my legs go completely numb after 1 to 2 kms. I was talking to my massage therapist about it and I commented that "in the last month...". Could this be related to being on "a" med now for one month? Makes me wonder. It's a bit surprising too because the weather has been getting warmer and I'm feeling it. I also have this weird effect going on that my trial doctor wants me to watch. Just before bed some nights my feet go cold. Regardless of how hot it is, the sensation varies drastically from the rest of my body so it keeps me from falling asleep until my feet warm up. At first I thought this was just a winter thing. But now that my body is warmer from the general warmer weather its so obvious when my feet go cold. So, I have to look at my feet and report back to my doc what colour they are. He said to look for either white or blue and then they'll decide what thats about. Weird.