I got the phone call today about starting the process for the Fingolimod clinical trial! Yay! I'm excited. The first appointment is on May 7th. This will be the screening appointment where they'll run me through all the tests and make sure I'm a good candidate on all health aspects. So, this is what I'm in for:
- Physical exam
- Pulse and blood pressure
- Blood samples for sending to Novartis for future evaluations
- Blood tests for HIV and Hepatitis
- Pregnancy test
- EDSS exam (Expanded Disability Status Scale)
- MSFC exam (MS Functional Composite)
- PFT (Pulmonary Function Test)
- Chest X-ray
- ECG (Electrocardiogram)
- And last but not least an eye exam
Phew! That'll keep me busy! I'll be bringing lots of knitting as you have to
know they'll be tonnes of waiting time in between all these tests.
Kamloops and Area want an MS Clinic!
If you live in the following cities in BC and would like to see an MS clinic opened for your area, please participate! Deadline is May 1. "This region includes the communities of Williams Lake, 100 Mile House, Cache Creek, Lillooet, Lytton, Merritt, Kamloops, Barriere, Clearwater, Blue River, Chase, Salmon Arm, Sicamous, Revelstoke, and all communities in between. The questionnaire, is available at www.mssociety.ca/kamloops or by calling 1-888-304-6622. The same number can be contacted for assistance completing the form. Deadline for submissions is May 1."
One week to go
Well, it's one week today until I will forever change the non-medicating way
I've been living with my MS. On the one hand, I'm feeling really positive and
good about doing something about my disease. Whether it's being fully admitted
to this clinical trial (I'm assuming I meet all the criteria at this point),
or moving to a current day therapy I'm happier making a dent in what the disease
is doing in me. I may not be able to predict, control or change what "it's"
doing but I sure as hell want to disrupt it as much as I can! On the other hand,
I have one last week to live with only the symptoms of my MS (few and far between these
days) and not any potential side effects of medication. I feel like I should
be taking these last days of med free life for granted as they aren't likely
to happen again considering I can't hide from my MRI results. Nor would be doing
myself any favours in not doing medication as I'm going to have to live with
my MS for the rest of my life!