caution larry

Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos.

Subscribe (RSS)

no larry

My bloglines



November 2004
December 2004
January 2005
February 2005
March 2005
April 2005
May 2005
June 2005
July 2005
August 2005
September 2005
October 2005
November 2005
December 2005
January 2006
February 2006
March 2006
April 2006
May 2006
June 2006
July 2006
August 2006
September 2006
October 2006
November 2006
December 2006
January 2007
February 2007
March 2007
April 2007
May 2007
June 2007
July 2007
August 2007
September 2007
October 2007
November 2007
December 2007
January 2008
February 2008
March 2008
April 2008
May 2008
June 2008
July 2008
August 2008
September 2008
October 2008
November 2008
December 2008
January 2009
February 2009
March 2009
April 2009
May 2009
June 2009
July 2009
August 2009
September 2009
October 2009
November 2009
December 2009
January 2010
February 2010
March 2010
May 2010
June 2010
July 2010
September 2010
November 2011


Monday, April 23, 2007
It's time!

2007-04-23 16:59:04

I got the phone call today about starting the process for the Fingolimod clinical trial! Yay! I'm excited. The first appointment is on May 7th. This will be the screening appointment where they'll run me through all the tests and make sure I'm a good candidate on all health aspects. So, this is what I'm in for:

  • Physical exam
  • Pulse and blood pressure
  • Blood samples for sending to Novartis for future evaluations
  • Blood tests for HIV and Hepatitis
  • Pregnancy test
  • EDSS exam (Expanded Disability Status Scale)
  • MSFC exam (MS Functional Composite)
  • MRI
  • PFT (Pulmonary Function Test)
  • Chest X-ray
  • ECG (Electrocardiogram)
  • And last but not least an eye exam

Phew! That'll keep me busy! I'll be bringing lots of knitting as you have to
know they'll be tonnes of waiting time in between all these tests.

Kamloops and Area want an MS Clinic!

2007-04-24 08:50:00

If you live in the following cities in BC and would like to see an MS clinic opened for your area, please participate! Deadline is May 1. "This region includes the communities of Williams Lake, 100 Mile House, Cache Creek, Lillooet, Lytton, Merritt, Kamloops, Barriere, Clearwater, Blue River, Chase, Salmon Arm, Sicamous, Revelstoke, and all communities in between. The questionnaire, is available at or by calling 1-888-304-6622. The same number can be contacted for assistance completing the form. Deadline for submissions is May 1."
One week to go
2007-05-01 12:55:51

Well, it's one week today until I will forever change the non-medicating way
I've been living with my MS. On the one hand, I'm feeling really positive and
good about doing something about my disease. Whether it's being fully admitted
to this clinical trial (I'm assuming I meet all the criteria at this point),
or moving to a current day therapy I'm happier making a dent in what the disease
is doing in me. I may not be able to predict, control or change what "it's"
doing but I sure as hell want to disrupt it as much as I can! On the other hand,
I have one last week to live with only the symptoms of my MS (few and far between these
days) and not any potential side effects of medication. I feel like I should
be taking these last days of med free life for granted as they aren't likely
to happen again considering I can't hide from my MRI results. Nor would be doing
myself any favours in not doing medication as I'm going to have to live with
my MS for the rest of my life!