Mandatory Rest Period

It's time!

2007-04-23 16:59:04

I got the phone call today about starting the process for the Fingolimod clinical trial! Yay! I'm excited. The first appointment is on May 7th. This will be the screening appointment where they'll run me through all the tests and make sure I'm a good candidate on all health aspects. So, this is what I'm in for:

Physical exam
Pulse and blood pressure
Blood samples for sending to Novartis for future evaluations
Blood tests for HIV and Hepatitis
Pregnancy test
EDSS exam (Expanded Disability Status Scale)
MSFC exam (MS Functional Composite)
MRI
PFT (Pulmonary Function Test)
Chest X-ray
ECG (Electrocardiogram)
And last but not least an eye exam

Phew! That'll keep me busy! I'll be bringing lots of knitting as you have to
know they'll be tonnes of waiting time in between all these tests.

Kamloops and Area want an MS Clinic!

2007-04-24 08:50:00

If you live in the following cities in BC and would like to see an MS clinic opened for your area, please participate! Deadline is May 1. "This region includes the communities of Williams Lake, 100 Mile House, Cache Creek, Lillooet, Lytton, Merritt, Kamloops, Barriere, Clearwater, Blue River, Chase, Salmon Arm, Sicamous, Revelstoke, and all communities in between. The questionnaire, is available at www.mssociety.ca/kamloops or by calling 1-888-304-6622. The same number can be contacted for assistance completing the form. Deadline for submissions is May 1."
One week to go
2007-05-01 12:55:51

Well, it's one week today until I will forever change the non-medicating way
I've been living with my MS. On the one hand, I'm feeling really positive and
good about doing something about my disease. Whether it's being fully admitted
to this clinical trial (I'm assuming I meet all the criteria at this point),
or moving to a current day therapy I'm happier making a dent in what the disease
is doing in me. I may not be able to predict, control or change what "it's"
doing but I sure as hell want to disrupt it as much as I can! On the other hand,
I have one last week to live with only the symptoms of my MS (few and far between these
days) and not any potential side effects of medication. I feel like I should
be taking these last days of med free life for granted as they aren't likely
to happen again considering I can't hide from my MRI results. Nor would be doing
myself any favours in not doing medication as I'm going to have to live with
my MS for the rest of my life!

- posted by Anonymous @ 9:30 PM - Link @ 9:30 PM - Link to this post - Comments (0)

			Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos. Subscribe (RSS) My bloglines Archives Current November 2004 December 2004 January 2005 February 2005 March 2005 April 2005 May 2005 June 2005 July 2005 August 2005 September 2005 October 2005 November 2005 December 2005 January 2006 February 2006 March 2006 April 2006 May 2006 June 2006 July 2006 August 2006 September 2006 October 2006 November 2006 December 2006 January 2007 February 2007 March 2007 April 2007 May 2007 June 2007 July 2007 August 2007 September 2007 October 2007 November 2007 December 2007 January 2008 February 2008 March 2008 April 2008 May 2008 June 2008 July 2008 August 2008 September 2008 October 2008 November 2008 December 2008 January 2009 February 2009 March 2009 April 2009 May 2009 June 2009 July 2009 August 2009 September 2009 October 2009 November 2009 December 2009 January 2010 February 2010 March 2010 May 2010 June 2010 July 2010 September 2010 November 2011

	Monday, April 23, 2007 It's time! 2007-04-23 16:59:04 I got the phone call today about starting the process for the Fingolimod clinical trial! Yay! I'm excited. The first appointment is on May 7th. This will be the screening appointment where they'll run me through all the tests and make sure I'm a good candidate on all health aspects. So, this is what I'm in for: Physical exam Pulse and blood pressure Blood samples for sending to Novartis for future evaluations Blood tests for HIV and Hepatitis Pregnancy test EDSS exam (Expanded Disability Status Scale) MSFC exam (MS Functional Composite) MRI PFT (Pulmonary Function Test) Chest X-ray ECG (Electrocardiogram) And last but not least an eye exam Phew! That'll keep me busy! I'll be bringing lots of knitting as you have to know they'll be tonnes of waiting time in between all these tests. Kamloops and Area want an MS Clinic! 2007-04-24 08:50:00 If you live in the following cities in BC and would like to see an MS clinic opened for your area, please participate! Deadline is May 1. "This region includes the communities of Williams Lake, 100 Mile House, Cache Creek, Lillooet, Lytton, Merritt, Kamloops, Barriere, Clearwater, Blue River, Chase, Salmon Arm, Sicamous, Revelstoke, and all communities in between. The questionnaire, is available at www.mssociety.ca/kamloops or by calling 1-888-304-6622. The same number can be contacted for assistance completing the form. Deadline for submissions is May 1." One week to go 2007-05-01 12:55:51 Well, it's one week today until I will forever change the non-medicating way I've been living with my MS. On the one hand, I'm feeling really positive and good about doing something about my disease. Whether it's being fully admitted to this clinical trial (I'm assuming I meet all the criteria at this point), or moving to a current day therapy I'm happier making a dent in what the disease is doing in me. I may not be able to predict, control or change what "it's" doing but I sure as hell want to disrupt it as much as I can! On the other hand, I have one last week to live with only the symptoms of my MS (few and far between these days) and not any potential side effects of medication. I feel like I should be taking these last days of med free life for granted as they aren't likely to happen again considering I can't hide from my MRI results. Nor would be doing myself any favours in not doing medication as I'm going to have to live with my MS for the rest of my life! - posted by Anonymous @ 9:30 PM - Link @ 9:30 PM - Link to this post - Comments (0)