caution larry

Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos.

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Tuesday, January 23, 2007
 
Just so you know...
2007-01-23 14:41:48

I just wanted to let any readers know that I am doing these postings as a benefit to anyone that wants to know about what I'm finding in the research world of MS. But its a big benefit to me so that I know I'm contributing to knowing all I should and be the best patient I can be living with MS. I've been getting requests as of late from people wanting me to give them info on how to sign up for trials or get more info on certain topics. My postings are found through news releases, so I'm not an expert in these drugs. But, here are my thoughts I can offer you... -If I wanted more info on a trial drug I would phone my MS clinic to inquire about that particular one. If I wanted to be a part of that trial it would have to be through a reputable clinic anyways or the clinic might know of another drug that might benefit you more. The clinical trials area of an MS clinic are a good resource. -If I couldn't find info there, I would google the company name that makes that trial drug and contact that company directly. I would guess that if they were actively recruiting and received an active inquiry from you, they would respond. Otherwise, I'm sorry that I can't help you any further. I try to put as much time as life will allow into my blog and sometimes time and energy are short :) But if your a part of a trial and would like others to know your experience, by all means send me a blurb that I can post and hopefully others will benefit from that.