Mandatory Rest Period

Yup, I'll be the first to admit it! I'm a delinquent blogger for sure! Perhaps this is the 5 year lull one feels? Hmmm.... Anyhoooo thought I would post a quickie update if anyone still reads ;)

I was at the MS clinic a couple weeks ago for another clinical trial appointment. My newest EDSS score is 1.5 which was a bit blech to see even though I know that's low. I've not had any attacks recently but I am not healing well. I had scrap on my leg and 7 weeks later it was still there and not healing. Weird. An affect from the Fingolimod no doubt. My trial continues though and I keep taking my little pill every morning. Still no real side effects that I can come up with. I so hope the rest of you can go on this pill soon! The last rumours I saw was perhaps attempting FDA approval at the end of this year. I hope I can stay on the trial if Novartis does get approval!

And today I'm happy to be three weeks out from moving day. It's so much easier to be almost fully unpacked and away from all the craziness that moving is. My fatigue and physical pain was at a pretty manageable point throughout. I was pretty happy about that. And I've been taking my Baclofen at night and thats AWESOME! My lumbar doesn't keep me awake all night and I actually sleep! Makes me a happy camper in the mornings.

- posted by Anonymous @ 4:08 PM - Link @ 4:08 PM - Link to this post - Comments (0)

Monday, September 14, 2009
Yoga

So, I'm thinking about getting into yoga now that my move is all done. Does anyone have any suggestions on what "kind" to look for and weather I should talk to the instructor about my MS? I know there are lots of genres but thats about all I know. Oh, and I know that Bikrams yoga, that one in the heat, is NOT for me :)

- posted by Anonymous @ 4:25 PM - Link @ 4:25 PM - Link to this post - Comments (0)

			Hi, I’m Kim! This site provides a little insight to my journey of being diagnosised with Remitting Relapsing Multiple Sclerosis on October 26th 2004. I review books and documentaries, post MS-related news, and share my photos. Subscribe (RSS) My bloglines Archives Current November 2004 December 2004 January 2005 February 2005 March 2005 April 2005 May 2005 June 2005 July 2005 August 2005 September 2005 October 2005 November 2005 December 2005 January 2006 February 2006 March 2006 April 2006 May 2006 June 2006 July 2006 August 2006 September 2006 October 2006 November 2006 December 2006 January 2007 February 2007 March 2007 April 2007 May 2007 June 2007 July 2007 August 2007 September 2007 October 2007 November 2007 December 2007 January 2008 February 2008 March 2008 April 2008 May 2008 June 2008 July 2008 August 2008 September 2008 October 2008 November 2008 December 2008 January 2009 February 2009 March 2009 April 2009 May 2009 June 2009 July 2009 August 2009 September 2009 October 2009 November 2009 December 2009 January 2010 February 2010 March 2010 May 2010 June 2010 July 2010 September 2010 November 2011

	Tuesday, September 29, 2009 *Delinquent* Yup, I'll be the first to admit it! I'm a delinquent blogger for sure! Perhaps this is the 5 year lull one feels? Hmmm.... Anyhoooo thought I would post a quickie update if anyone still reads ;) I was at the MS clinic a couple weeks ago for another clinical trial appointment. My newest EDSS score is 1.5 which was a bit blech to see even though I know that's low. I've not had any attacks recently but I am not healing well. I had scrap on my leg and 7 weeks later it was still there and not healing. Weird. An affect from the Fingolimod no doubt. My trial continues though and I keep taking my little pill every morning. Still no real side effects that I can come up with. I so hope the rest of you can go on this pill soon! The last rumours I saw was perhaps attempting FDA approval at the end of this year. I hope I can stay on the trial if Novartis does get approval! And today I'm happy to be three weeks out from moving day. It's so much easier to be almost fully unpacked and away from all the craziness that moving is. My fatigue and physical pain was at a pretty manageable point throughout. I was pretty happy about that. And I've been taking my Baclofen at night and thats AWESOME! My lumbar doesn't keep me awake all night and I actually sleep! Makes me a happy camper in the mornings. - posted by Anonymous @ 4:08 PM - Link @ 4:08 PM - Link to this post - Comments (0) Monday, September 14, 2009 *Yoga* So, I'm thinking about getting into yoga now that my move is all done. Does anyone have any suggestions on what "kind" to look for and weather I should talk to the instructor about my MS? I know there are lots of genres but thats about all I know. Oh, and I know that Bikrams yoga, that one in the heat, is NOT for me :) - posted by Anonymous @ 4:25 PM - Link @ 4:25 PM - Link to this post - Comments (0)