Thursday, May 5th
Capilano Mall Ã Marine Dr., N. Vancouver Ã located by the elevators Ã 11 AM to 4 PM
Park Place Ã Burrard St., Vancouver Ã in the lobby Ã 8 AM to 2 PM
Pacific Centre Ã Georgia St., Vancouver Ã inÂ the TD Bank Tower Ã 11 AM to 2 PM
Friday, May 6th
Capilano Mall Ã 12 Noon to 6 PM
Pacific Centre Ã 11 AM to 2 PM
BC Hydro Ã 333 Dunsmiur St., Vancouver Ã in the lobby Ã 12 Noon to 4 PM
BC Hydro Ã 6911 South Point Dr., Burnaby Ã in the lobby Ã 8 AM to 3 PM
GVRD Ã 4330 Kingsway, Burnaby Ã in the lobby Ã 7: 30 AMÂ to 9 AM Ã ONLY!!
Liquor Store Ã Cambie & 39th Ã out front of store Ã 3 PM to 8 PM
Liquor Store Ã Nordel Way & Scott Rd., Surrey - out front of the store Ã 3 PM to 7 PM
Saturday, May 7th
Liquor Store Ã Cambie & 39th Ã out front of store Ã 11 AM to 4 PM
Liquor Store Ã Nordel Way & Scott Rd., Surrey - out front of the store Ã 11 AM to 4 PM
Just found this link with bracelets similar to Lance's Live Strong yellow bands. I like the fact that they created them with all the acronyms of MS from aroudn the world. Good idea. The first shipment of them is in mid May.
between life and work. And of course that has to include in the equation my
MS symptoms for what they are today. Since I've been back to work full time
for the last 3 months I'm finding my self trying to protect my sleep time
and "down" time to the max that I can. Basically so I can go back to work on
a monday and feel refreshed and normal. The problem with this is that all I'm
doing is trying to save my energies so I can work. Where is the life blanace
part? When should I be socializing and going on weekend getaways, having friends
over for dinner? And more fun... when am I going to get rid of the second ugly
faux wall in my bedroom!? :)
So, the end result after lots of soul searching is to drop my job to part time for right now. I don't really know why this was soooo difficult for me to do. I know its the right thing to do. Financially we'll be okay with some adjustments to how we live, but thats a small sacrifice to having life back right?
I think the major part that has bothered me the most is that kinda for the first time I have to let the MS hit me in the face for real. When I was off work, I was continually getting better on my own and was moving towards getting back to work and I accomplished that. No change to life but a small blurp in the path. But this decision meant accepting that the MS has changed me and I need to recognize that. Tough to do when you really don't want to.
On the brighter side though... how great will it be to have a 3 day a week job and be able to help Tod with running his business? And get all the walls painted that I want to! There's a huge list of things I want to do once my hours are figured out at work. So far they have been supportive but are in the stages of trying to figure out how to make a 3 day week work. So, thats me this week.
So, I still don't have resolution to getting a part time position here at work. Its a little unnerving. My position itself is a role that requires someone be available all 5 days of the week. If I move to part time, I've asked for a 3 day work week. Its not really a great fit. Hopefully with some good brainstorming in the next week something will come to light and I'll have an end date to this full time position. I hate sitting status quo though. I just want a decision to be made and fly with it!
If you live in the lower mainland here in BC here's an opportunity to make the MS Society a little money. On May 23rd (Victoria Day) a movie is being shot at Nat Bailey's Stadium. A John Cusack movie called Martian Child! So, if you volunteer to be an extra for the day, they will donate 500.00 dollars to the MS Society!
Contact Danielle Rippingale if you are interested in participating at firstname.lastname@example.org
How to Get On Clinical Trials
Maybe next week?
Well, still no change to my working full time. I have to wait until next week when my team lead gets back from holidays. When she gets back she'll get a note from my doctor saying I have to be on reduced hours to part time. I'm sure she will not be happy about that as she wanted me to continue working full time for the next 8 weeks! I'm not okay with that.
Monday is a stat holiday and I'm just craving the start of the long weekend. I have a dinner out with some girlfriends on Saturday night and thats about it! Tod is away in Arizona for some of the weekend. All in all, a pretty relaxed weekend ahead. Bliss!
On Saturday I went for an eye appointment so I could get new glasses. I was fully expecting to be told that my eye sight had diminished more since having all the crazy eye stuff last summer. I felt like I had lost vision in one eye at that time, so I wasen't sure if it had recovered or what. So, surprise, surprise, my eyesight has gotten BETTER! Huh? My optometrist had no explanation why my eyes would have gotten better by two steps in each eye. She can only assume that way back in 2003 when I was last vision checked, my eyes must have been not at their best and that this could be my true eye sight now. Weird and totally unexpected. So, I got some new shnazzy frames and a lighter prescription. Crazy.
Rufous Hummingbird feeding
This is a true test of patience trying to get a good shot of a hummingbird. Many hours spent this weekend trying to get him and to no avail! The lighting isn't right or he's just so fast that I can't zoom in fast before before, poof! He's gone!
Okay, okay lesson learned. Its 30 plus degrees outside and at the peak of the afternon I decided to finish mowing the lawn. I could have died from overheating myself. I'm not even sure I could describe to my husband what I was feeling. He kept asking... nauseous? Dizzy? Hot? What? Its this incredibily overwhelming heat from within that hits and takes way too long to go away. I can't even focus on anything else until I make the heated feeling go away. I ended up going upstairs and filling two ziploc bags with ice and just placing them where ever the heat was radiating from. Crazy.
So I have final resolution on my job going part time. I start immediately and my schedule will be Tuesdays, Wednesdays and Thursdays. I was shocked that they choose those days as I certainly wasen't asking for 4 day weekends! Holy! So, I'm happy it all has been worked out. I can't wait to have the extra days to look after me. For once I'm finally putting my own self before anything. Its a weird feeling.
I know this is a long weekend in the US, so happy long weekend to all my fellow US'ers :)
My latest efforts to get a shot of the hummingbird!
Okay, so I'm getting a little closer... although what I really want is a close up shot of him flying! Impossible! This shot required Tod setting up lighting to get it!
This is an article on how smoking can progress your MS.
** (From the article)**
These results support the hypothesis that cigarette smoking is associated with an increased risk of multiple sclerosis, and suggest that smoking may be a risk factor for transforming a relapsing-remitting clinical course into a secondary progressive course.
I'm curious about what you think. Do you have MS and have you tried to smoke marijuana to alleviate the pain or symptoms? I watched a documentary on how pot is helping people with neurological problems. On the show, an MS patient with severe tremours took one inhale on a joint and within seconds stopped shaking and could hold the joint himself. Share your stories in the comments section as I'm sure many others would want to hear about them! Post annonomously if you want!
I haven't smoked pot for MS... I think I was in highschool when I tried it and didn't care for it. However, with it being decriminalized here in BC and Bayer coming out with a Cannibis spray... makes me wonder how it really could help MS. Hmmm....